AQW 40835/22-27 Written question to the Minister of Health

To ask the Minister of Health whether there are plans to introduce or commission a dedicated specialist clinic for Ehlers-Danlos Syndrome.

Asked by Michelle Guy MLA on 17 February 2026

  • Answered
  • Written
  • After due date
Tabled
17 February 2026
Answer due by
4 March 2026
Answered
9 March 202620 days after tabling
Department
Department of Health
Priority question
No

Answer

Elhers-Danlos patients are currently referred by GP to Rheumatology services across the five Health and Social Care Trusts in Northern Ireland for multidisciplinary support for joint issues, physiotherapy and pain management.

There are currently no plans to commission a dedicated specialist clinic for Elhers-Danlos Syndrome in Northern Ireland.

Official sources