AQW 40834/22-27 Written question to the Minister of Health
To ask the Minister of Health to detail the current clinical pathways available for individuals diagnosed with Ehlers-Danlos Syndrome.
Asked by Michelle Guy MLA on 17 February 2026
- Answered
- Written
- After due date
- Tabled
- 17 February 2026
- Answer due by
- 4 March 2026
- Answered
- 9 March 202620 days after tabling
- Department
- Department of Health
- Priority question
- No
Answer
Elhers-Danlos patients are currently referred by GP to Rheumatology services across the five Health and Social Care Trusts in Northern Ireland for multidisciplinary support for joint issues, physiotherapy and pain management.
There are currently no plans to commission a dedicated specialist clinic for Elhers-Danlos Syndrome in Northern Ireland.